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We are the largest organization in the U.S. exclusively helping mesothelioma patients and loved ones.
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100 Answers To Top Mesothelioma Questions
The Bestselling Cancer Fighting Cookbook
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Understanding Malignant Mesothelioma
Mesothelioma is a rare cancer caused by asbestos exposure and it is often misunderstood. Receiving a mesothelioma diagnosis can feel overwhelming and frightening, but please know you are not alone in this fight. Whether you or a loved one has been diagnosed, we’re here to support you every step of the way.
Our goal is to help you make sense of the diagnosis, empower you with knowledge, and provide the resources you and your family need to navigate this journey with confidence and hope:
Better Understand Malignant Mesothelioma with Our Free Resources
“If you're diagnosed with mesothelioma, move on it, and do it immediately, because it's important. We don't know how much time we have.”
Steve, Pleural Mesothelioma Patient & Resource Recipient
20+ Years of helping mesothelioma patients and their loved ones
Award winning team of over 280 mesothelioma patient advocates
Ship our free resource guide to all 50 states
The 4 Stages of Malignant Mesothelioma
Early detection of mesothelioma offers the best chance for treatment and improved outcomes, as the cancer is smaller and localized at this stage. For pleural mesothelioma, specialists use a four-stage system (TNM) to determine how far the cancer has spread. This staging system helps guide treatment decisions and personalized care:
"My husband Marty had mesothelioma long before he was diagnosed and he was stage 4."
Marge, Wife of Pleural Mesothelioma Patient Marty
Learn More About Mesothelioma with Our Free Resources
How Malignant Mesothelioma Is Treated
Mesothelioma treatment options are tailored to each patient’s unique diagnosis, focusing on improving outcomes, managing symptoms, and enhancing quality of life. Mesothelioma treatment can include:
Surgery
Palliative procedures
Radiation therapy
Chemotherapy
Immunotherapy
Targeted Therapy
Multimodal Therapy
Learn More About Treatment Options by Claiming Our Free Resources
Reminder: About 30% of All Mesothelioma Patients Are Veterans
Access resources and support set aside exclusively for mesothelioma patients who served our country:
Limited availability for December resources
"60 years ago I was exposed to asbestos in the Navy."
John, Pleural Mesothelioma Patient in Florida, Navy Veteran
7 Answers to Common Mesothelioma Questions
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About Mesothelioma Resources
We're an award winning team of over 280 mesothelioma patient advocates across the United States.
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We are the largest organization in the U.S. exclusively helping mesothelioma patients and loved ones.
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Malignant Mesothelioma Survival Rates
Survival rates for mesothelioma can vary significantly based on key factors including the stage at diagnosis, the location of the tumor, the cell type, and the patient’s overall health.
Although a mesothelioma prognosis is often difficult, early detection and modern treatment advancements have helped many patients live longer and maintain a better quality of life.
Breakthrough therapies and personalized care plans continue to provide hope, offering patients and their families new possibilities for the future.
“When they tell you: you have cancer, everything changes. They gave me hope.”
Robert, Mesothelioma Patient & Resource Recipient in Florida
Better Understand Survival Rates with Our Free Resources
How Malignant Mesothelioma Is Treated
Mesothelioma treatment options are tailored to each patient’s unique diagnosis, focusing on improving outcomes, managing symptoms, and enhancing quality of life. Mesothelioma treatment can include:
Learn More About Treatment Options by Claiming Our Free Resources
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Mesothelioma is caused by exposure to asbestos, a mineral once widely used in construction, manufacturing, and other industries for its heat resistance and durability.
While mesothelioma most commonly affects the lining of the lungs (the pleura), it can also develop in the lining of the abdomen (peritoneum), the heart (pericardium), or the testicles (tunica vaginalis).
The term “malignant” signifies that this is a serious and cancerous condition that tends to grow and spread quickly without treatment. Early diagnosis and timely treatment are essential to improving outcomes and quality of life.
• Pleural mesothelioma (lungs): The most common type of mesothelioma affecting the chest and lungs
• Peritoneal mesothelioma (abdomen): Forming in the lining of the stomach
• Pericardial mesothelioma (heart): A very rare type which develops around the heart
• Testicular mesothelioma (testes): The rarest type, affecting the lining of the testes.
Knowing the type of mesothelioma is important as it can help you determine the best treatment options available and which specialists to see.
Before a biopsy, doctors often use imaging tests like X-rays, CT scans, or MRIs to detect abnormalities and determine the best area for tissue sampling.
The biopsy method used varies depending on the location of the mesothelioma:
• Pleural Mesothelioma (lung lining): The most common method is a thoracoscopy (pleuroscopy). This is where a thin tube-like instrument with a light and camera (a thoracoscope) is inserted through a small incision in the chest, allowing doctors to examine the pleura directly and collect tissue samples for a precise diagnosis.
• Peritoneal Mesothelioma (abdominal lining): Diagnosis often involves a laparoscopy, where a thin flexible instrument with a light and camera (a laparoscope) is inserted into the abdominal cavity to collect tissue samples.
• Pericardial Mesothelioma (heart lining): A biopsy may involve pericardiocentesis, where fluid is removed from the heart lining (pericardium) for testing, or a more invasive surgical biopsy if needed.
• Testicular Mesothelioma (testicular lining): A tissue biopsy from the affected area of the scrotum is typically performed. If you or a loved one has been diagnosed with mesothelioma, seek guidance from a specialist as quickly as possible.
Early diagnosis and fast action can not only provide more treatment options, but also a better chance of improving survival and quality of life.
Mesothelioma is a rare and complex disease. Confirming the diagnosis with a specialist can give you clarity and confidence in what to do next.
A second opinion may also introduce new treatment options or approaches that better fit you and your family’s needs.
But you’re not alone—financial assistance is available. Common options include legal claims for asbestos exposure, veterans’ benefits, and support from insurance or financial aid programs.
You can call our number and one of our patient advocates will help you discover what’s available for you and we’ll do our best to support you in reducing your financial stress and burden.
Your doctor can likely help provide a referral or call us and our patient advocates can help connect you to the mesothelioma specialists best suited for you or your loved one’s specific needs.
This exposure puts veterans at a higher risk of developing mesothelioma, a disease that can take decades to appear after initial exposure.
Veterans account for about 30% of all mesothelioma patients. Fortunately, there are additional veterans benefits and specialized care programs designed to support veterans and their families through this difficult journey.
Please call us if you need answers to mesothelioma veteran related questions.
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Malignant Mesothelioma